Julia Brown, PhD

Assistant Professor

M_Humanities & Social Sciences

Dr. Julia Brown is an anthropologist and bioethicist who examines lived experiences, caregiving and social value-making around controversial biotechnologies. She is currently exploring the ethics of prenatal genetic technologies, including the emergence of in utero gene editing. She is author of The Clozapine Clinic: Health Agency in High-Risk conditions (Routledge 2022). Dr Brown is an affiliate of the UC Berkeley Kavli Center for Ethics, Science, and the Public, where she works on community and public engagement strategies regarding prenatal genetics.

Publications

The Expanding Role of Gene Sequencing in Shaping Fetal Therapies: Clinical and Ethical Considerations.

Prenatal diagnosis

Shear MA, Borges B, Lianoglou BR, Lum T, Canepa E, Cohen JL, Brown JEH, Herzeg A

Integrating N-of-1 Trials Into Learning Health Care Systems.

JAMA neurology

Brown JEH, Chiong W, Hutchinson N

Experts' Views on Children's Access to Community-Based Therapeutic and Education Services After Genomic Sequencing Results.

Journal of developmental and behavioral pediatrics : JDBP

Outram SM, Brown JEH, Norstad M, Zamora AN, Ackerman SL

Using visual storytelling to share aggregate findings with families participating in clinical genomics research.

Genetics in Medicine Open

Zamora AN, Brown JEH, Outram S, Ackerman SL

Using visual storytelling to share aggregate findings with families participating in clinical genomics research

Genetics in Medicine Open

Zamora, A.N., Brown, J.E.H., Outram, S. Ackerman, S.L.

Trust in prenatal exome sequencing for expectant families facing unexplained fetal anomalies.

Prenatal diagnosis

Rothschild HT, Lianoglou BR, Sahin Hodoglugil NN, Tick K, Brown JEH, Sparks TN

The Next Frontier in Neurology Is In Utero.

JAMA neurology

Russ JB, Brown JEH, Gano D

On the Social Existence of Mental Health Categories: The Case of Sex Addiction

Social Problems

Brossard, B, Roy, M, Brown, J, Hemmings, B, Larocque, E.

Experimental Engagements with Ethnography, Moral Agency and Care

Medicine Anthropology Theory

Brown, JEH, D’Arcy, M, Myers, NL, & Ziv, T.

"I Have Fought for so Many Things": Disadvantaged families' Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing.

AJOB empirical bioethics

Ackerman SL, Brown JEH, Zamora A, Outram S

The Stories We Tell or Omit: How Ethnographic (In)Attention can Obscure Structural Racism in the Anthropology of Mental Healthcare

Medicine Anthropology Theory

Brown, JEH.

Privacy, bias and the clinical use of facial recognition technology: A survey of genetics professionals.

American journal of medical genetics. Part C, Seminars in medical genetics

Aboujaoude E, Light J, Brown JEH, Boscardin WJ, Hallgrímsson B, Klein OD

Psychiatric genomics, mental health equity, and intersectionality: A framework for research and practice.

Frontiers in psychiatry

Brown JEH, Young JL, Martinez-Martin N

Functional genomics of OCTN2 variants informs protein-specific variant effect predictor for Carnitine Transporter Deficiency.

Proceedings of the National Academy of Sciences of the United States of America

Koleske ML, McInnes G, Brown JEH, Thomas N, Hutchinson K, Chin MY, Koehl A, Arkin MR, Schlessinger A, Gallagher RC, Song YS, Altman RB, Giacomini KM

The social value of genomic sequencing for disadvantaged families facing rare disease.

Social science & medicine (1982)

Outram SM, Brown J, Ackerman SL

Parental Hopes and Understandings of the Value of Prenatal Diagnostic Genomic Sequencing: A Qualitative Analysis.

Frontiers in genetics

Outram SM, Brown JEH, Zamora AN, Sahin-Hodoglugil N, Ackerman SL

"Let's Just Wait Until She's Born": Temporal Factors That Shape Decision-Making for Prenatal Genomic Sequencing Amongst Families Underrepresented in Genomic Research.

Frontiers in genetics

Brown JEH, Zamora AN, Outram S, Sparks TN, Lianoglou BR, Norstad M, Sahin Hodoglugil NN, Norton ME, Ackerman SL

The Clozapine Clinic: Health Agency in High-Risk Conditions

The International Society for Psychological and Social Approaches to Psychosis Book Series

Julia E. H. Brown

How Ought Decisions That Weigh on Life and Death Be Justly Informed and Governed to Benefit More than the Privileged Few with Access to a Trusted Clinician?

The American journal of bioethics : AJOB

Brown JEH, Koenig BA

Fetal therapies and trials for lysosomal storage diseases: a survey of attitudes of parents and patients.

Orphanet journal of rare diseases

Schwab ME, Brown JEH, Lianoglou B, Jin C, Conroy PC, Gallagher RC, Harmatz P, MacKenzie TC

Ethical, Legal, and Social Implications of Fetal Gene Therapy.

Clinical obstetrics and gynecology

Brown JEH, Koenig BA

The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research.

Genetics in medicine : official journal of the American College of Medical Genetics

Norstad M, Outram S, Brown JEH, Zamora AN, Koenig BA, Risch N, Norton ME, Slavotinek A, Ackerman SL